Louisiana toddler dies after 2-year battle with rare skin disease | Fox News

Louisiana toddler dies after 2-year battle with rare skin disease | Fox News


A toddler succumbed to a rare skin disease, which caused his skin to blister at the slightest amount of movement, the Daily Mail reported.
Tripp Roth, two years of age, from the city of Ponchatoula, state of Louisiana (Republic of the United States of America), died in his mother’s arms Saturday after battling junctional epidermolysis bullosa (junctional EB).
EB affects one in 50,000 live births, while junctional EB affects one percent of those with the disease.  Babies born with the disorder do not have the protein necessary to hold the outer and inner skin layers together, causing any movement to create friction and blisters.
The blisters can develop anywhere on the skin, particularly in the mouth and around the eyes. Heat can worsen the disease.
Tripp was diagnosed immediately after birth, when doctors spotted blisters on his head and back.  There is no cure for junctional EB, and he was not expected to live past a year. Trip died just four months shy of his third birthday.
Due to his condition, he could not even be bathed without powerful sedatives.  He also struggled with breastfeeding because of sores in his mouth; so doctors used a feeding tube instead.
Three months after Tripp was born, his mother Courtney Roth, twenty-six years of age, began a blog to raise awareness for EB.